The ten mistakes everyone makes
Every caregiver makes most of these. They're what love does before it learns how the disease works. Read them once now; skip months of finding out the hard way. No shame anywhere on this page.
1 · Correcting the facts
"No Mom, it's Tuesday. No, Dad died in 1998." Their brain can't file the correction. You're spending your relationship to win nothing. Instead: respond to the feeling under the words, and let the calendar lose. (Ch. 2)
2 · Quizzing
"Do you remember me? Do you know who this is?" A test they may fail in front of someone they love. Instead: hand them the answer as a gift: "Hi Mom, it's Sarah, your daughter."
3 · Taking it personally
The accusation, the slammed door, the "you're not my daughter." It's the disease talking through them. It still hurts; it isn't aimed. Instead: step out, breathe, and use the "For you" cards when it lands hard.
4 · Reasoning with the disease
Explaining, negotiating, presenting evidence. Logic needs the machinery the disease is dismantling. Instead: shorter words, warmer tone, redirect. Five words at eye level beat fifty from across the room.
5 · Treating a sudden change as "progression"
The most dangerous one on this list. Dementia moves in months; a bad week is usually an infection, dehydration, or a medication problem, and treatable. Instead: sudden change = call the doctor today and say "this is sudden."
6 · Waiting on the paperwork
Powers of attorney need capacity, and capacity leaves quietly. Families who wait end up in guardianship court. Instead: elder-law visit this month, while their voice can still be in the documents. (Ch. 8)
7 · Hiding the hard parts from the doctor
Politeness in the exam room (not mentioning the aggression, the wandering, your exhaustion) buys untreated problems. Instead: frequencies and dates, written down, handed over. The prep sheet makes it painless.
8 · Doing it alone until you break
"We're managing" is the sentence caregivers say right up until the collapse. Help added early is cheap; help added after a crisis is an ambulance. Instead: one standing helper and one respite option before you need them. (Ch. 5)
9 · Making promises to the past
"I'll never put you in a home" was a promise made to a different situation, without this information. Keeping it at any cost can harm you both. Instead: promise the real thing, "I will always make sure you're safe and loved", and let the address serve the promise. (Ch. 7)
10 · Spending every good hour on chores
The laundry will outlive the window for joy. Caregivers consistently say their regret isn't the missed chores. It's the missed afternoons. Instead: when a good hour shows up, take the walk, play the music, look at the photo album. That's the actual work.
“As a father has compassion on his children, so the LORD has compassion on those who fear Him. For He knows our frame; He is mindful that we are dust.”
Psalm 103:13–14Every mistake is the same reflex: treating the disease like a person who can meet you halfway. Every fix is the same move: change what you do (the words, the timing, the environment, the help) because you're the one who can.